Johns Hopkins DNA Diagnostic Laboratory

PLEASE NOTE: Informed consent from the patient is required prior to ordering a genetic test. The DNA Diagnostic Lab's consent is located on the second page of the requisition form. There is also a patient brochure, "Things Every Patient Should Know Before Consenting to a Genetic Test", available for download.

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Craniofrontonasal Syndrome (CFNS)


Gene:    EFNB1
Test:   Direct mutation analysis by gene sequencing of the coding regions of EFNB1
     
CPT Codes:
  Complete Sequence

83891 x 1
83898 x 7
83904 x 14
83909 x 14
83912 x 1

Sensitivity:   About 73% of patients with a clinical diagnosis of craniofrontonasal syndrome have an EFNB1 gene mutation that can be detected by sequence analysis of the exons and surrounding splice junctions.  At least 6% of patients have large deletions and some patients may have mutations in a second locus(Xp22).  

This assay will not detect mosacism.

Cost:   $1022
Turn Around Time:    4 to 5 weeks
Special Considerations:   Somatic mosaicism has been described in 10-15% of families; thus, it may not always be possible to detect the pathogenic EFNB1 mutation in the first affected family member. 

A brief clinical history on the patient and a three-generation pedigree are requested.    
     

Link to Sample Requirements

Link to Requisition and Billing forms

Link to clinical information on Craniofrontonasal Syndrome

Link to Patient and Family Page for general resources on genetic testing.