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Children's Center Patient Visits White House and Disney World

Champions Across America. Sixteen-year-old Columbia, Maryland resident Scott Summe has been selected to represent Johns Hopkins Children's Center patients during the national Children's Miracle Network broadcast. As one of 50 children-one from each state-participating in the Children's Miracle Network's Champions Across America program, Scott and his family will visit Washington, DC on Wednesday April 3 for lunch on Capitol Hill with the U.S. Senators followed by a tour of the White House and a visit with the President and First Lady. Then Scott and his family will fly to Disney World in Orlando, Florida for the videotaping of the National Children's Miracle Network Broadcast which airs locally on WMAR-TV2 on Sunday June 3, 8 a.m.-7 p.m.
Born with Crouzon syndrome, an inherited condition that causes the skull bones to fuse before birth, Scott has undergone 21 surgeries and faces more in the future. Although his appearance often causes stares, Scott with the support of his family, meets the world on his terms. Recently, for example, he competed in a cross country race. He raised his arms in triumph, announcing, "I beat three people!" And unfazed by the 46 others who finished ahead of him. Scott speaks at local elementary schools, using candid descriptions of his experience in coping with Crouzon's to inspire kids to face their own challenges.

The Champions Across America program is sponsored by the Independent Order of Foresters, a proud supporter of CMN. The Children's Miracle Network is a non-profit organization that helps to raise money for affiliated children's hospitals, including Johns Hopkins Children's Center.
Read the Sun Article

Last Updated: 6/14/02

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