Center for Craniofacial Development
Related Web Sites 


Related Literature 

 

 

 

Research Sites

Center For Craniofacial Development and Disorders, The Johns Hopkins Hospital, The Johns Hopkins University
The CCDD main site. Clinician, researcher, and teacher profiles, mutation database, parent and patient support links, publications, and events calendar.
Department of Craniofacial Development, GKT Dental Institute of King's College London
Gene Expression in Tooth
Information about expression of different genes in the developing tooth.
International Consortium for Oral Clefts Genetics (ICOCG)

National Institute of Dental and Craniofacial Research
Searchable database by diseases and disorder, molecule, chromosome, or spreadsheet

National Institute of Dental Research Spectrum Series

National Center for Biotechnology Information: Online Mendelian Inheritance in Man
Database catalog of human genes and genetic disorders contains textual information, pictures, and reference information. The OMIM Morbid Map, a catalog of genetic diseases and their cytogenetic map locations arranged alphabetically by disease, is now available.

Pediatric Database (PEDBASE)
Contains descriptions of over 550 childhood illnesses. Entire database can be downloaded as shareware.

The National Human Genome Research Institute
Links to educational outreach programs on human genetics and genetic technologies for the general public, health care professionals, media, educators and students. Includes a genetic glossary for the general public.

 



 

 

 

Educational Sites

Human Embryology Website
Site based on William J.Larsen's book: Human Embryology. Contains animationso elopmental processes and self-tutorials

Embryo Images Normal and Abnormal Mammalian Development
Tutorial using scanning electron micrographs (SEMs)

The National Human Genome Research Institute
Links to educational outreach programs on human genetics and genetic technologies for the general public, health care professionals, media, educators and students.
University of Sheffield, 2BDS Oral Anatomy:Craniofacial Development
Tutorial online exam

 



 

 

 

Clinical Center Sites

Australian Crano-Facial Unit
Birmingham Craniofacial Unit
Cedars-Sinai Medical Center Craniofacial Clinic (Los Angeles, CA)
Cleft Palate-Cranofacial Center University of Pittsburgh
Columbia-Presbyterian Medical Center, Pediatric Neurosurgery
patient and family oriented explanations of major neurosurgical complications, craniofacial anomalies
Craniofacial Services: Children's Health Care of Atlanta

Cranial Therapies, Inc.
a licensed provider of Dynamic Orthotic Cranioplasty (DOC)
includes a small glossary of craniofacial related terms

Craniosynostosis Division of the Institute of Reconstructive Plastic Surgery at The New York University
Department of Craniofacial Development, GKT Dental Institute of King's College London
Harvard/MGH Neurosurgery Faculty
Lancaster Cleft Palate Clinic
Massachusetts General Hospital, Neurosurgical Service
National Institute of Neurological Disorders and Stroke (NINDS)
Queen's University of Belfast: Trauma and Orthopaedic Surgery
The Craniofacial Foundation of Arizona
The World Craniofacial Foundation
University of Adelaide, South Austrailia, Pediatric Neurosurgery
information for hospital staff and medical students about common pediatric neurosurgery issues.

 



 

 

 

Patient Support Sites

AboutFace U.S.A.
Alliance of Genetic Support Groups
Apert Support and Information Network
Born to be Cleft
Changing Faces
Children's Craniofacial Association
Cleft Palate Foundation
Craniofacial Support Group
Crouzon Support Network
FACES
Fetal Alcohol Syndrome Family Resource Institute
Forward Face
Langer-Giedion Syndrome Association
Let's Face It
Microtia-Congenital Ear Institute
Moebius Syndrome
National Organization for Rare Disorders
National Organization on Fetal Alcohol Syndrome
Prescription Parents
Smiles
Stickler Syndrome Support Group
Stickler Syndrome: Treatment, Prevention, Cure
The Cleft Club
The Personal Side of Craniofacial Differences
The Romberg's Connection
The Smile Train
Treacher Collins Family Support Group
Treacher Collins Network
Trial Web Site
Wide Smiles

 



 

 

Image-oriented Sites

The Surgical Planning Lab at Brigham and Women's Hospital
Multidisciplinary, high-tech research institution, combining the fields of Computer Science and MRI Radiology towards a goal of real-time 3D imaging of patients during surgery

California State University, Chico, Technology and Learning Program
Interactive 3D Skull module, QTVR of skull bones

Voxel Digital Holography
A company site dedicated to developingproprietary technologies for displaying volumetric information from digital 3D data.

Montreal Neurological Institute - Brain Imaging Centre
One of the largest scientific communities in North America dedicated solely to research imaging of the human brain.

 



 

 

QTVR Related Information Sites

Apple Corporation
QuickTime Downloads, support, technical advice

International QuickTime Virtual Reality Association
Resources, hints, tips, techniques, and samples.

PanoramicVR: Panoramic Immersive Imaging Directory

 



 

 

Developmental and Disorder-related Literature

Carlson, Bruce M. Human Embryology and Developmental Biology. Mosby.Baltimore, 1999.
Cohen, Michael M. Jr. Craniosynostosis Diagnosis, Evaluation, and Managment. Raven. New York. 1986.
England, Marjorie A. Life Before Birth. Mosby-Wolfe, London. 1996.
Enlow, Donald H. Handbook of Facial Growth. W.B. Saunders Co. Philadelphis, 1975.
Goodrich, James Tait and Craig Hall. Craniofacial Anomalies: Growth and development from a surgical perspective. Thieme. New York, 1995.
Langebartel, David A. The Anatomical Primer. An Embryological Explanation of Human Gross
     Morphology
.University Park Press. Baltimore, 1977.
Larsen, William J. Human Embryology. Churchill Livingstone. New York, 1997.
Ranly, Don. M. A Synopsis of Craniofacial Growth. Appleton & Lange. Norwalk, 1988.
Sadler, T.W.Langman's Medical Embryology. Williams & Wilkins. Baltimore, 1985.
Slavkin, Harold C. Developmental Craniofacial Biology. Lea & Febiger. Philadelphia, 1979.
Sweeney, Lauren J. Basic Concepts in Embryology. A Student's Survival Guide. McGraw-Hill,
     New York, 1998.

 



 

 

Genetic-specific Literature

Bellus GA, Gaudenz K, Zakai EH, et al. Identical mutation s in three different fibroblast growth factor receptor genes in autosomal dominant cranosynostosis syndromes. Nat Genet. 1996; 14: 174-176.
Moloney DM, Wall SA, Ashworth GJ, et al. Prevalaence of Pro250Arg mutation of fibroblast growth factor receptor 3 in coronal craniosynostosis. Lancet. 1997; 349: 1059-1062.

 



 

 

Surgical-oriented Literature

Goodrich, James Tait and Craig Hall. Craniofacial Anomalies: Growth and development from a surgical perspective. Thieme. New York, 1995.

 



© JHU /JHH Last revision: Feb 2000