This condition involves
a small, underdeveloped jaw during gestation. The small jaw affects
the position of the tongue and interferes with the normal closure
of the palate. It may be seen alone or as part of one of several
genetic syndromes. Visit these Pierre-Robin Sequence links to learn
more:
| Site |
Notes |
| American Academy of Pediatrics Policy Statement - Bicycle Helmets |
Bicycling is one of the most popular recreational sports among children in America and is the leading cause of recreational sports injuries treated in emergency departments
|
| American Association of Neurological Surgeons and Congress of Neurological Surgeons |
American Association of Neurological Surgeons (AANS) a scientific and educational association devoted to the development of neurological surgery, with more than 5,400 members in the United States and Canada
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| American College of Medical Genetics |
Designed to bring the latest information to ACMG members and the public
|
| Ask the Craniofacial Doc |
A Q & A forum to provide general information regarding medical aspects of craniofacial conditions
|
| Association of Birth Defect Research for Children |
An area to research birth defects, or participate in the National Birth Defect Registry
|
| CDC: National Center on Birth Defects and Developmental Disabilities |
A center established to focus on birth defects and disabilities- Created by the Children's Health Act of 2000
|
| Changing Faces |
Focus is on disfigurements affecting the face and other parts of the body or disfiguring conditions
|
| Children's Craniofacial Association |
Also:http://www.ccakids.com
|
| Cleft Palate-Craniofacial Center University of Pittsburgh |
Craniofacial Center in Pittsburgh, PA
|
| COGENE: the Craniofacial and Oral Gene Expression Network |
COGENE is a group of investigators involved in describing human gene expression changes that take place during early stages of development with emphasis on craniofacial development
|
| Craniofacial diseases |
Craniofacial diseases and abnormalities - conditions that involve the skull and upper face
|
| CRANIOSUPPORT |
This site offers support to families dealing with craniosynostosis.
|
| FACES: The National Craniofacial Association |
A place where parents with children born with some type of anomaly affecting their face, head, and/or neck can turn for information and support
|
| Foundation for Nager and Miller Syndromes |
International support group dedicated to helping those affected by these two similar genetic conditions which involve severe facial and limb anomalies, but does not usually affect intellect
|
| Friendly Faces |
A resource for, and network of, individuals with facial differences, parents, families, friends, and health care professionals
|
| National Foundation for Facial Reconstruction |
Addressing the suffering of the more than 220,000
children born each year with birth defects of the head
and face and the thousands more with acquired
disfigurements, the NFFR lends its support to the
mulidisciplinary craniofacial team at the Institute of
Reconstructive Plastic Surgery at NYU Medical Center.
|
| National Institutes of Health Office of Rare Disorders |
Links to definitions, causes, treatments and publications; links to Institutes and Centers at the National Institutes of Health (NIH); links to glossary for defining technical language and an extensive list of rare diseases
|
| Treacher Collins Foundation |
People interested in developing and sharing knowledge and experience about Treacher Collins syndrome and related conditions
|
