Family:
Guide for first time users
The premature closing of one or more of the spaces that are normally
present between individual bones of the skull. Infants born with
abnormal skull shapes should be evaluated for craniosynostosis.
An incomplete formation of the upper lip or roof of the mouth (palate),
leaving a hole or notch in the affected area. Clefting is a common
birth defect and may be surgically repaired. It may occur alone
or as part of a genetic syndrome.
Aperts, Carpenter, Crouzon, Fetal Alcohol, Goldenhar, Hallerman-Streiff,
Hemifacial Microsomia, Moebius, Noonan, Orofaciodigital, Pfeiffer,
Pierre Robin, Treacher Collins, and Waardenberg Syndrome.
How do I get an appointment to see a physician at Johns Hopkins?
The Johns Hopkins Cleft Clinic (410) 955-9478
The clinic offers services to patients with a wide range of Craniofacial Anomalies. The goal of the clinic is to provide individualized, inter-disciplinary, and coordinated care to allow each patient to develop into a happy, healthy infant, child, adolescent, and ultimately adult.
Monday afternoon's (twice a month) beginning at 1 pm. until the clinic is over (usually around 4-5 pm).
The Johns Hopkins Craniofacial Clinic (410) 955-7888
The treatment team offers an interdisciplinary approach to diagnosis and treatment, which draws on the expertise of more than 50 specialists in many areas, including: neurosurgery, plastic surgery, anesthesia, critical care, neuroradiology, developmental pediatrics, genetics, neurology, nursing, ophthalmology, otolaryngology, orthodontics, dentistry, audiology, language pathology. The team specializes in treating young patients with craniofacial anomalies such as craniosynostosis, craniofacial syndromes, facial clefts, tumors, traumatic deformities. A range of diagnostics and support services also are available on site. In emergencies or other urgent situations the pediatric craniofacial team is backed up by the resources of Johns Hopkins Medicine.
The Johns Hopkins Genetics Clinics (410) 955-3071
The genetics clinics provide a full range of clinical expertise in family history, ascertainment, clinical examination and diagnosis, and genetic risk assessment and counseling. The genetics clinic is supported by an extensive range of diagnostic biochemical, cytogenetic, and DNA laboratories. The Johns Hopkins Hospital has a complete range of supporting specialties, including radiology, ophthalmology, and surgery. Finally, the clinic is staffed by 10 Board-certified clinical geneticists, 2.5 genetic counselors, a full-time clinical psychologist, and part-time family therapists.
JHOC: Tuesdays (8:00 am - 5:00 pm)
Greenspring Station: 1st Thursday every month (1:00 - 5:00 pm)
Hagerstown: 3rd Friday every other month
What services are offered at
Johns Hopkins for people with craniofacial disorders?
Directions to Johns Hopkins Medical Institutions
Lodging for patients and families
Last Updated:
9/3/03
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