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Other Breast Cancer Resources
American Cancer Society
This organization will provide you with information on everything from detection and treatment to survivorship to prevention and advances in research. They also offer important questions to ask your doctor, a guide on how to talk to others about your cancer, and a helpful interactive treatment decision tool.?
They will provide you connections to your local chapter of the ACS and offer special programs and services for breast cancer patients, including: free informational pamphlets about breast cancer treatment, causes, the impact the disease has on a woman physically and emotionally, and other information pertinent to women newly diagnosed or facing a recurrence of the disease. The ACS also has general programs called CanSurmount and I Can Cope that unite volunteers, patients and their families.
Army of Women
The Love/Avon Army of Women is looking for volunteers to take part in the clinical research that will help us understand what causes breast cancer?and how to stop it. Their goal is to recruit one million healthy women of every age, ethnicity and risk (whether you have had breast cancer or not), providing scientists with an easy and direct way to find the volunteers they need for their studies.
Because scientists have a hard time finding women to volunteer for their studies, they typically study cell lines that have been developed in their labs, samples from tissue banks, or conduct research on animals, like mice. But what happens in cell lines or mice is not the same as what happens in women. And that?s why we need YOU to take part in this revolutionary innovative research initiative. We can be the generation that eliminates breast cancer by identifying what causes this disease and stopping it before it starts.
Artemis, our breast cancer electronic magazine, is a journal focused on treatment of breast cancer with contributors from the Johns Hopkins Breast Center and other organizations.
Avon's Breast Cancer Crusade
The mission of the Avon Foundation Breast Cancer Crusade is to raise funds and awareness for advancing access to care and finding a cure for breast cancer, with a focus on the medically underserved. The organization raises funds through many initiatives, including local fundraising programs; direct online donations; the year-round sale of special Crusade "pink ribbon" products; and special events, walks and runs worldwide, including the U.S. Avon Walk for Breast Cancer series and the global Walk Around the World.
This site provides the latest information on all aspects of breast cancer, including prevention, treatment options, and day-to-day matters that are often overlooked.
Breast Cancer Network of Strength (formerly known as Y-ME National Breast Cancer Organization)
This is a national organization designed to provide information and emotional support to women diagnosed with breast cancer, as well as opportunities to become involved in the breast cancer advocacy movement. Some of the programs it provides include matching a newly diagnosed patient with a trained breast cancer survivor volunteer who had a similar experience, as well as providing support and education for the person supporting the cancer patient by pairing them with a fellow caregiver who went through a similar situation with their partner.
A social service agency that offers professional counseling and financial support services to cancer patients.
Lifestyle tips for prevention and survivorship. Keeping you well beyond cancer! By Julie Lanford MPH, RD, CSO, LDN
CenterWatch Clinical Trials Listing
CenterWatch is a directory of all clinical trials occurring throughout the world. It allows you to view the research results of each trial, as well as search for opportunities to participate in clinical trials occurring in your area. It also provides a database of information on all FDA-approved drugs and updates on new medical therapies.
An online resource offering cancer patients information regarding fertility options before, during, and after treatment.
FORCE: Facing Our Risk of Cancer Empowered
FORCE's mission is to improve the lives of individuals and families affected by hereditary breast and ovarian cancer. They have several objectives to accomplish this mission, including:
- Providing women with resources to determine whether they are at high risk for breast and ovarian cancer due to genetic predisposition, family history, or other factors
- Providing information about options for managing and living with these risk factors
- Providing support for women and their families as they pursue these options
- Raising awareness of hereditary breast and ovarian cancer
- Representing the concerns and interests of our high-risk constituency to the cancer advocacy community, the scientific and medical community, the legislative community, and the general public
- Promoting research specific to hereditary cancer
- Reducing disparities among underserved populations by promoting access to information, resources and clinical trials specific to hereditary breast and ovarian cancer
The Fuchsia Foundation is a nonprofit organization offering greeting cards and other products, as well as guidance, to help cancer survivors and the people who love them. A portion of the money raised supports research and other programs at Hopkins.
Your doctor says you need chemotherapy to help fight your cancer. If you’re feeling a bit overwhelmed or even frightened, don’t worry—you’re not alone! Millions of women just like you have made it through chemo successfully—and you can, too. By visiting Guide2Chemo.com, you’ve taken an important first step. This specially designed online guide will help you plan for your treatments and stay on track during treatment. Most important, it will show you how to thrive during and after your treatments are completed.
Hopewell Cancer Support
The mission of Hopewell Cancer Support is to create a community for all people with cancer, their families and friends. This community encourages an exchange of information, the development of a support system and the presence of hope.
Image Recovery Centers
Image recovery centers offer a comprehensive hospital-based appearance enhancement program available to cancer patients today. Our program has been designed to help you understand and prepare for the appearance changes that you may experience due to chemotherapy, radiation therapy, or surgery. For nearly a decade, we have been educating cancer patients about what to expect and how to prevent potential problems. We will help you normalize your physical appearance, which will enable you to be an active, informed participant in your recovery.
Johns Hopkins Integrative Medicine & Digestive Disease Center
Complementary medicine therapies are sometimes beneficial to cancer patients undergoing chemotherapy or other treatments.
Johns Hopkins Ovarian Cancer Center
Because of the link between breast cancer and ovarian cancer, it is important to learn about ovarian cancer risk assessment and screening programs. To help with this, Johns Hopkins Medicine created the Breast and Ovarian Surveillance Service (BOSS). [link to Breast and Ovarian Surveillance Service & Genetic Testing] The service is provided by a team of clinicians including physicians, genetic counselors and nurse practitioners.
Johns Hopkins Fertility Center
The Johns Hopkins Fertility Center works with women who have had treatment for breast cancer.
Johns Hopkins Physical Medicine and Rehabilitation
Our physical therapists help patients restore their physical strength and flexibility after undergoing certain surgical procedures for breast cancer.
Johns Hopkins Sidney Kimmel Comprehensive Cancer Center, Image Recovery Center
This resource, located in the Weinberg Building on the main campus downtown, provides wigs, breast prostheses and skin care for chemotherapy patients.
Emotional resources and support programs for kids ages 4-17 who have a parent battling cancer.
The Lance Armstrong Foundation
An organization dedicated to helping people live healthy after cancer focusing on education, awareness, and outreach.
LBBC’s National Surveys of Women Affected By Breast Cancer
Numerous reports from national surveys of young women affected by breast cancer, women affected by triple-negative breast cancer, and women living with metastatic disease.
Living Beyond Breast Cancer
The goal of this national education and support organization is to empower all women affected by breast cancer to live as long as possible with the best quality of life by providing information on:
- Breast cancer treatment, recurrence, testing and side effects
- Clinical trials
- Surgeries like mastectomy, lumpectomy and reconstruction
- Medicines like tamoxifen, Femara, Arimidex and Aromasin
- Targeted therapies like Herceptin and Tykerb
- A variety of medical and quality-of-life issues
Mothers Supporting Daughters with Breast Cancer (MSDBC)
This national non-profit organization, created by The Johns Hopkins Breast Center administrative director, Lillie Shockney, and her mother Charmayne Dierker, is designed to provide educational information about breast cancer treatment and emotional support to mothers who have daughters battling breast cancer. The program connects a mother with a mother volunteer who has already had a daughter diagnosed and treated with breast cancer. She provides her emotional support and guidance how to be more helpful to her daughter from point of diagnosis through to completion of treatment. The organization also has a ?Mother's Handbook? and ?Daughters Companion Booklet? which provide some constructive suggestions how a mother can be helpful to her daughter during such a medical crisis. All materials are provided free of charge.
The organization was created in recognition that a mother feels helpless when she learns that her daughter has been diagnosed with breast cancer. A woman needs as much support as she can get has after being diagnosed with breast cancer, including support from her mother. Her mother may be too distressed to provide constructive support though, which can negatively affect her daughter. This program helps mothers cope while they provide much-needed support to their daughters. A mother does not necessarily have to be the biological mother; any woman who is fulfilling such a support role qualifies.
The National Breast Cancer Coalition (NBCC)
The goals of the NBCC include: increase federal funding for research on the cause and ultimately prevention of breast cancer; improve models of research and access to quality care and clinical trials, especially for uninsured patients; and inform, train and direct patients in effective advocacy efforts.
National Cancer Center Network (NCCN)
The NCCN, a not-for-profit alliance of 21 of the world?s leading cancer centers, including the Johns Hopkins Sydney Kimmel Comprehensive Cancer Center, is dedicated to improving the quality and effectiveness of care provided to patients with cancer. Their site provides information designed to give patients better understanding of their cancer so they can work with their health care providers to achieve longer and better-quality lives.
National Coalition for Cancer Survivorship
The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country. It advocates at the federal level for insurance, employment and legal rights for people with cancer, and it raises awareness of cancer survivorship through its publications. NCCS also facilitates networking among cancer organizations and encourages the study of cancer survivorship. Their website provides many useful resources for cancer survivors.
National Lymphedema Network
An international organization providing support and education to women with lymphedema.
Patient Resource Cancer Guide
The goal of Patient Resource Publishing is to empower people who are suffering with life-altering diseases by giving them the most comprehensive and up-to-date guides to treatment and facilities for their disease free of charge. The information is written for ease of understanding and is offered in printed publications and online at PatientResource.net.
People Living with Cancer
This patient information site by the American Society of Clinical Oncology (ASCO) is designed to help patients and families make informed health care decisions by providing information on all stages of cancer, from prevention to diagnosis and treatment to survivorship.
The Pink Pixies are three young women passionate about making a difference in the breast cancer advocacy movement. Inspired by the women they met at an Avon Walk for Breast Cancer; they made it their mission to travel the country educating others about breast cancer awareness. Along with their many volunteers, the Pink Pixies are also actively involved with their flagship organization, the Johns Hopkins Avon Foundation Breast Center.
The Red Devils funds services to improve quality of life for breast cancer patients and their families. The emotional and physical impact of this disease may make some of the things we take for granted nearly impossible, like house cleaning, getting to doctors appointments, preparing meals for your family.
A national non-profit organization dedicated to supporting young Jewish women battling breast cancer.
Sisters Network, Inc.
An organization specializing in support of African Americans with breast cancer.
Susan G. Komen for the Cure
The Foundation is the largest private funder of breast cancer research in the U.S., having invested more than $1 billion since its inception in 1882. As the global leader of the breast cancer movement, and the world?s largest grassroots network of volunteer breast cancer survivors and activists, they?re working to save lives, empower people, ensure quality of care for all and energize science to find the cure to eradicate breast cancer for good. The Komen Alliance is a comprehensive program for the research, education, diagnosis and treatment of breast disease.
Susan G. Komen Maryland Chapter
Komen Maryland and its volunteers serve the state by providing educational services and materials; organizing fundraising events such as Komen Maryland Race for the Cure; and awarding grants to programs that increase access to quality breast health care, including free screening, transportation to appointments, financial support, appropriate diagnostic testing and a wide range of follow-up services.
The Wellness Community
This program has extensive support and education programs which encourage emotional recovery and a feeling of wellness for people battling all types of cancer. All services are free.
The Wellness Community of Greater Washington, D.C.
This is the local chapter of the Wellness Community, of which Johns Hopkins Avon Foundation administrative director, Lillie Shockney, serves on the Board of Directors. They provide support, education, and hope for cancer patients, their families and local communities.
Young Survival Coalition
Support resources and online support specifically dedicated to women under the age of 40 with breast cancer.