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Education
       

HD Literature

Genetic Research and the Search for the Gene

Mapping Fate
by Alice S. Wexler
Ordering Information: www.bn.com $18.95 + sh
ISBN # 0520207416

Tells the story of a family at risk for HD and the search of the gene that causes the disorder.


At Risk

Genetic "Russian Roulette"
by Nancy S. Wexler


Cookbooks

The Non-Chew Cookbook
by J. Randi Wilson


Financial Decisions

Tomorrow's Choices: Preparing Now for Future
American Association of Retired Persons (AARP)
Legal, Financial, and Health Care Decisions


Food & Nutrition

Pass the Calories, Please!
by F. Gail
Ordering Information: American Dietetic Association
216 W. Jackson Blvd., Suite 800
Chicago, IL 60606-6995
. (312) 899-0040. ISBN: 0-88091-134-6

This cookbook is designed as a practical guide for people who need suggestions on ways to increase calories in their diets. Practical tips are given on how to handle conditions that prevent one from eating well, such as nausea, vomiting, diarrhea, sore or dry mouth, or a general loss of appetite. The recipes included are rich in the nutrients that may be needed at such times, including vitamins, protein, and fiber. The book also discusses eating out, commercial supplements, and food safety.

Eat Up! Nutrition Advice and Food Ideas for People Living With HIV and AIDS
by C. Smigelski
Order Information: Avery Publishing Group
120 Old Broadway
Garden City Park, NY 11040
(800) 548-5757 ISBN: 0-89529-734-5
Price: $12.95

This cookbook and nutrition guide for people with HIV disease contains basic nutrition advice to help restore or maintain quality of life. The first section includes a brief overview of basic nutrition and a discussion of the importance of nutrition in treatment. This section outlines specific nutrition recommendations for persons living with HIV/AIDS. A food guide illustrates these recommendations. Part two of the book consists of recipes designed to address specific nutritional needs of people with HIV. The recipes are easy to prepare and contain ingredients that most people would already have on hand. Each recipe contains a calorie count and the amounts of carbohydrates, protein, and fat in the dish. Each recipe also outlines the symptoms that the recipe is designed to alleviate

The Non-Chew Cookbook
by J. Randi Wilson
Ordering Information: Wilson Publishing Inc.
P.O. Box 2190
Glenwood Springs, CO 81602-2190
(800) 843-2409
$23.95


Genetics

Genetic "Russian Roulette"
by Nancy S. Wexler
Ordering Information: Hereditary Disease Foundation
Genetic Russian Roulette:
http://www.hdfoundation.org/testread/russroul.html


Guthrie Family

Woody Guthrie, A Life
by Joe Klein


Health Care

Tomorrow's Choices: Preparing Now for Future, American Association of Retired Persons (AARP)
Legal, Financial, and Health Care Decisions


Huntington's Disease

A Physician's Guide to the management of Huntington's Disease 2nd Edition
by Adam Rosenblatt, M.D, Neal G. Ranen, M.D., Martha A. Nance, M.D., Jane S. Paulsen, Ph.D

Huntington's Disease Society of America
158 West 29th Street, 7th Floor
New York, NY 10001-5300
1-800-345-HDSA

Hope Through Research
by Sarah Lieber

Saint Vitus' Dance
by Jill Rubalcaba


Facing Serious Illness

Handbook for Mortals: Guidance for People Facing Serious Illness
by Joanne Lynn, M.D., Joan Harrold, M.D
w/ forward by Rosalynn Carter


Fiction

Frameshift
by Robert Sawyer


Legal Issues

Tomorrow's Choices: Preparing Now for Future
American Association of Retired Persons (AARP) a free publication
Ordering Information: 601 E. Street, NW
Washington, DC 20049
Publication Number: #D13479

Legal, Financial, and Health Care Decisions (pamphlet)


Personal Stories

Woody Guthrie, A Life
by Joe Klein

Faces of Huntington's
by Carmen Leal-Pock

Portraits of Huntington's
by Carmen Leal-Pock


Research

Hope Through Research (pamphlet)
by Sarah Lieber


Treatment

A Physician's Guide to the management of Huntington's Disease 2nd Edition
by Adam Rosenblatt, M.D, Neal G. Ranen, M.D., Martha A. Nance, M.D., Jane S. Paulsen, Ph.D.
Huntington's Disease Society of America
158 West 29th Street, 7th Floor
New York, NY 10001-5300
1-800-345-HDSA


Well Spouse

Mainstay: For the Well Spouse of the Chronically Ill
by Maggie Strong $22; Used: $4.69
Order Information: Fr Amazon.com -- Out of Print
Penguin Books, 1988
Limited availability

- Overview
- HD Terms, Signs and Symptoms
- HDSA Baltimore Support Group
- HD Literature
- Helpful Internet Links
- Fellowships and Professional Development
- Myths about HD

 



 

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