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Helpful Internet Links
We have provided these web sites as a resource for you. We
cannot verify the accuracy of all of the information contained at
these sites. Should you have questions regarding information on
these sites, please contact your physician for further information.
General HD Information
Huntington's Disease Society of America
http://www.hdsa.org
What's Huntington's Disease?
http://www.personalmd.com/news/huntington_071800.shtml
HDSA Youth
http://www.HDSAyouth.com
http://www.wemove.org/kidsmove/link.html
- or -
www.wemove.org
Clinical Trial Website for the National Institutes of Health
http://clinicaltrials.gov
Huntington Study Group
http://www.huntington-study-group.org
Hereditary Disease Foundation
http://www.hdfoundation.org
HOPES: Huntington's Outreach Project for Education, at Stanford
http://www.stanford.edu/group/hopes
Huntington’s Disease Advocacy Center
http://www.hdac.org
National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov
Caregiving
The Nonpharmacologic Management of Agitation in the Nursing Home:
A Consensus Approach
http://www.mmhc.com/nhm/articles/NHM9905/Nasr.html
Advance Directives
http://www.partnershipforcaring.org/Advance/index.html
A Behavioral Intervention Program for Long-Term Care
http://www.mmhc.com/nhm/articles/NHM9910/slattery.html
Caregiver Self Assessment Questionnaire-AMA (English and Spanish)
http://www.ama-assn.org/ama/pub/category/5382.html
What Caregivers Need From Doctors
http://www.hospicefoundation.org/caregiving/doctors.htm
Strategies for Managing Involuntary Weight Loss
http://www.woundcarenet.com/advances/supplements/btg006.htm
Advances in Skin & Wound Care
http://www.woundcarenet.com/
http://www.woundcarenet.com/industry/productpoints00.htm
Food & Nutrition
http://www.egregore.com/diseases/poorappetite.html
http://www.thebody.com/cdc/nutrtion.html
Appetite Control
http://www.herbnook.com/weight.htm
A Healthy Plan for Gaining Weight
http://www.personalmd.com/news/n0919053822.shtml
Guthrie
The Guthrie Center is in Western Massachusetts. The Center is
"The Church" in the Alice's Restaurant saga.
www.guthriecenter.org
Medication Information
Searchable Prescription Drug Assistance Programs
http://www.medicare.gov/Prescription/Home.asp
www.rxlist.com
Miscellaneous Information
Jerry's Lighthouse
www.hdlighthouse.org |
