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Community-Based Organizations

William E. Proudford Sickle Cell Fund, Inc.

On August 31, 2004, William E. Proudford passed away of complications of kidney disease resulting from diabetes.  Mr. Proudford also suffered from sickle cell disease (SCD), Paget's disease, and profound hearing loss.  Because of the unique challenges they encountered in understanding and getting adequate treatment for his sickle cell disease, his family started an effort to raise awareness about the disease.  In October, 2005, the William E. Proudford Sickle Cell Fund, Inc. (WEPSCF) was incorporated in Delaware as a non-profit organization.  The organization received its 501(c)(3) tax-exempt status in March, 2006.

Mission:  To support sickle cell awareness, education, state-of-the-art treatment and research, and to bring hope to families affected by this devastating disease.

Activities:

artSPEAKS Program
Awareness Program
Sickle Cell Program Support
Annual Fundraiser

Website:

http://wepsicklecell.org

Destiny Despite Diagnosis

Ms. Efa Ahmed-Williams is an adult living with sickle cell disease and the founder and director of Destiny Despite Diagnosis "Youth Living Richly Despite Chronic ILlness."  Destiny Despite Diagnosis provides education, advocacy services, and direct service programs that address the needs of individuals who have chronic illnesses.  The organization grew from its first transition program, "Destiny Despite Sickle Cell Disease," which started in 2008.  Efa created the Destiny Despite Diagnosis Sickle Cell Disease transition program to help youth with sickle cell anemia learn to care for themselves and realize the infinite possibilities for their lives.  As an adult living with sickle cell disease, she understands the importance of "living richly despite chronic illness."

Mission:  Destiny Despite Diagnosis' mission is to understand the need fior all members of the community to live helathy, complete, balanced and well lives.  Our programs have evolved to include sickle cell awareness and education and direct programs and resources that help all members of the community, especially youth and individuals with chronic illness.

Activities:

Sickle Cell Transition Program
Summer Camp
Exercise and Wellness Classes
Teen Center
Mental Health Services

Website:

www.destinyprogram.com

The Lauren D. Beck Foundation

The Lauren D. Beck Sickle Cell Foundation was established on September 2, 2004, by Anika Downs-WSilkerson and Tara Downs-Sanders.  The loving memories of Lauren D. Beck, beloved daughter, grand-daughter, sister and niece, raised a concern for the need for awareness of Sickle Cell Disease in Anne Arundel County and the surrounding areas.  As a result of our efforts, there was a public unveiling at the Stanton Center on October 9, 2004, in Annapolis, MD.  That event marked the beginning of fundraisers, awarded scholarships, blood drives, marrow drives and sickle cell trait screenings, all to promote sickle cell awareness.  The Foundation collaborates with other groups in the community such as the Annapolis Corvette Club, The AKA's of Annapolis, Delicados of Annapolis, Howard University Hospital, Maryland Department of Health and Mental Hygiene, DC-Gaps, AAMC, The Pediatric Group, and Family Health Centers of Baltimore, all to help our mission and the cause.  Anika Wilkerson was appointed in August, 2006 to the Hereditary and Congenital Disease Council for the State of Maryland, by former Governor Robert L. Ehrlich, Jr. and reappointed in July, 2008 by current Governor Martin O'Malley.  Anika Wilkerson is also a member of the Statewide Steering Committee on Services for Adults with Sickle Cell Disease.

Mission:  To promote the knowledge and understanding of Sickle Cell Disease as a health crisis and to advocate for people who are living with the disease.

Activities:

Bone Marrow Drives
Blood Drives
Sickle Cell Disease Awareness

Website:

www.laurenbeckscfoundation.org



The Maryland Sickle Cell Disease Association

The Maryland Sickle Cell Disease Association, Inc. (MSCDA) is a 501(c)(3) tax-exempt non-profit organization that was incorporated in 2006.  MSCDA was formed by concerned parents and interested individuals seeking to improve the lives of persons affected by Sickle Cell Disease in Maryland.  MSCDA seeks to work collaboratively with patients, families, healthcare providers, federal and state agencies and other community-based organizations to promote advocacy, education, research adn excellent healthcare delivery.

Mission:  To improve the quality of life for those affected by sickle cell disease by promoting advocacy, education, research and excellent healthcare delivery.

Activities:

Public School Nurses Training Programs
Public School Administratos and Educators Training Programs
Patient Support Groups

Website:

www.marylandsicklecell.org

 

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